Eminent singer Shaan today came forward to support and motivate the patients suffering from 'Lysosomal Storage Disorders Support Society' (LSDSS) to overcome their worries and encourage the afflicated children to stay happy even after such ordeals in Life.
The LSDSS had organised a programme to create awareness and understanding among the general public and decision makers about the rare diseases and their impact on patients on the occasion of International Rare Disease Day here.
She said in India, at present, the onus is on physicians, especially the paediatricians, to detect the early symptoms and ensure an accurate diagnosis as accurate diagnosis is the key to genetic counselling pre-natal diagnosis and therapy.
More than 100 patients and their families along with doctors from across the country participated in the event
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